Don’t Look Down hopes that more children will get the chance to live the life they deserve. We chose the name as to encompass Fred’s fearless and risk-taking attitude as well as conveying how difficult the whole journey is.

Our goal is to reach £150,000 to fund a valuable research project in Fred’s name.

Fred’s medical team said that they still don’t know why some types of leukaemia don’t respond to standard treatments. The money raised will fund research into finding new cures and treatment plans for refractory ALL. We also would like these new treatments to be kinder to children, with less short- and long-term side effects than existing chemotherapy.

We hope that we will all find risky and adventurous things to do to raise money in his name.

About CCLG

CCLG are proud to be a leading childhood cancer charity who fund top class research and provide free, trustworthy information for families as well as the UK and Ireland’s professional association for all those involved in the treatment and care of children with cancer.

You can find more information about us on our website.

Founder, Louise Bennett

Fred’s Mum Louise set up Don’t Look Down to ensure a legacy for Fred. As well as fundraising, Louise is also an advocate for bereaved parents and childhood cancer.

She has appeared on BBC Breakfast, GMB, Sky News, ITV, Capital and LBC. She has written articles for The New Statesman and Huffpost.

She also writes about grief and child loss on BlanketsandBiscuits.com